Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Thursday 23 November 2017

Another new date for the Fontan

We now have a new date for Jessica’s Fontan and will be going into hospital on 27th December ready for her operation on 28th December. Hopefully it will be third time lucky for us! It also means that we will be able to enjoy Christmas together before we have to get back on the hospital rollercoaster.

Jessica is now back at school and enjoying being with her friends again. We got to see her in her class assembly this morning which was lovely. 

Jessica waving silver pompoms in her class assembly


Hope that you all have a lovely Christmas and we will update again when we are back on Ocean Ward.
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1 comment:

  1. Anonymous23 November 2017 at 18:38

    I am so glad that you have Christmas together and a new date and I really hope it goes through this time. 💙

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