Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Thursday 6 September 2012

Jessica - the first year


Back in December, we gave a brief summary of Jessica’s first 100 days in numbers.  Now that she is a year old, we thought it was time to do it again!


Days spent in hospital: 91
Surgical procedures (after birth): 4 plus 2 cardiac catheter investigations
Hospital appointments: 18
Different hospitals visited: 5
Blog entries since birth (not including this one): 102
Blog pageviews since birth: 32,464
Weight gained since birth: 4930g (10lb 13oz)
Length increase: 20.5cm
Number of teeth: 2
Words in vocabulary: 4
Christenings attended: 1 (her own!)
Weddings attended: 5
Funerals attended: 4
Olympic postboxes visited: 26
Paralympic postboxes visited: 3
Weeks tube-fed: 12
Weeks breast-fed: 40
Precious moments: So many more than we ever dreamed possible

 What an amazing year it has been for us all – a bit of a rollercoaster ride at times, but our beautiful little girl has brought us so much joy in this past year that it really has been the best year of our lives.



Liquoriceuk
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